When I arrived at the emergency room on the day Henry was admitted to the hospital, I found my son bloodied, bruised and unconscious, hooked up to a ventilator and being frantically worked over by doctors and nurses who were trying to save his life. It was a terrifying, heart stopping thing for a mother to see, and I completely broke down. I was frantic. Henry’s father arrived only minutes after I did, and the ER doctor took us aside to explain that Henry was in very bad shape and might not live. If he did live, the doctor said, he could have brain damage.
I think I knew right then and there that we would never have him back.
But everyone else was optimistic. Family and friends told me not to give up hope. Optimism grew when he woke up and began speaking a few days later. I will never forget the first time he said, “Hi Mama” after opening his eyes. Henry remained hospitalized for five weeks after that day in the ER. And for most of that time, I was told by the doctors treating Henry that he would certainly live – he had passed the danger period. It became clear pretty quickly that he would be seriously disabled for the rest of his life, but after those first few critical days, no one thought he would die.
No one but me. I thought he would die. I could hardly even admit it to myself, but I just knew. And I think he knew too. He couldn’t speak very much at all, and his ability to express himself grew more and more limited with each passing week, but when we looked at each other, we could each see it in the other’s face – the fact that we both knew what was happening, even if others didn’t.
I am sure that’s why I could not tear myself away from him – ever – during the five weeks he was hospitalized before his death. People kept telling me to pace myself, to go home and rest, to try to stay focused on my job during work hours. “He’ll be coming home,” they would say. “You don’t need to stay at the hospital all the time. You’ll just wear yourself out, and he’s going to be okay. Go home. Go back to work.”
And I tried very hard to take that advice. It seemed rational and reasonable. During those weeks, I knew I needed to be more focused on my work. I knew that at 32 weeks pregnant, I should go home at night, rest, and eat a nutritious meal. But what I somehow knew in my heart – that my son was going to die soon – meant that I needed to be with him every single second that I could before I would lose him forever. So I stayed…and stayed…and stayed. I couldn’t sleep at night until I knew he was asleep for the night. I couldn’t eat unless he had been able to eat that day. I was involuntarily compelled to be with my son in body, mind and spirit – that’s just the way it was and there wasn’t anything I could do about it.
Those five weeks that we had with Henry before he died were a tremendous gift for all of us in our family. At my urging – again because I somehow knew that we needed to draw together around him because we wouldn’t have him with us much longer – his father and I jointly made the decision to mostly limit visitors to just close family. I definitely didn’t want anyone near him whom I believed had in any way enabled or supported his drug use. So mostly, he had just family with him during this time before his death. And our boy was never, ever alone. His father, mother, siblings, stepparents, aunts, uncles, cousins and grandmother were with him night and day. We fed him, bathed him, brushed his hair, rubbed his feet, changed his pajamas, read to him, teased him, played music for him and often, just sat quietly with him. We got to care for our 6 foot tall, teenage boy in a hands-on, physical way. He needed us and we needed him.







I look at photos from the weeks between Henry’s injury and his death and I see so much understanding in his eyes. I truly believe that he cherished the time he had being loved on and yes, babied by the people who loved him most because in the preceding year or two, as his drug use got worse and worse, he hadn’t let us help him like we had wanted to. We all reconnected with him as we tenderly cared for his every need. And he relished this care. For the first week or two after he regained consciousness, there was a peacefulness that radiated from Henry as he enjoyed just being surrounded by unconditional love.


As time went on, he became more frustrated with his increasingly limited ability to speak and to move. He wanted to play his guitar but couldn’t. He became more pensive and began to turn inward.


By the end, he was ready to go. He needed us to let him go. And the photos of Henry from his final days in the hospital, after he once again lost consciousness and was put back on life support are honestly just too painful for me to even look at. Sometimes I force myself to do it, though – to be sure I am remembering everything about our last days and hours together.
The final picture I have of my son is one I did not capture with a camera, but I will carry it in my heart forever. It was just after he left us. The wires and tubes had been removed. We could once again see his exceptionally beautiful face clearly. I hope and pray that he, too was also able to see clearly as he was freed once and for all from the drugs and the pain and from the shame and hurt that had tormented him as his addiction had consumed his life. I hope he could see clearly how much his father and I adored him, and how we will love him always and forever.
Our sweet Henry.
